tag:blogger.com,1999:blog-30983428.post1811174203865919366..comments2023-08-28T08:25:13.736-07:00Comments on The Gluten Doctors: Seizures Caused by Gluten Intolerance? You Be the Doctor and DecideThe Doctors of Root Cause Medical Clinichttp://www.blogger.com/profile/14989001572705413241noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-30983428.post-7016928885349603412016-07-23T08:15:33.813-07:002016-07-23T08:15:33.813-07:00Hi, where are you located? My daughter was diagnos...Hi, where are you located? My daughter was diagnosed with absence epilepsy at the age of 3 1/2. She is now 12 and suffers from hundreds of seizures a day. We have been on 10 different medicatons, nothing has worked or the side effects have been to severe. She now has developed a very rare type of epilepsy called "sunflower" syndrome. She waves her hand on front of her face in the bright lights and has learned to induce grand mals. 4 in the past 1 1/2 years. We are desperate. She is not currently gluten free, bc I feel I need help doing that Thank you Janine Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30983428.post-30512195565702931092014-05-20T01:54:35.810-07:002014-05-20T01:54:35.810-07:00how do you distinguish between vasovagal (sp?) epi...how do you distinguish between vasovagal (sp?) episode and absence seizure? I have had blackouts for many years -- originally only during vigorous exercise, but now during or after even moderate exercise and first thing when I wake up (I keep blacking out in the bathroom...). I have been thinking these were absence seizures (unable to capture in neuro lab, however), but have recently been reading about vasovagal episodes. I think the trigger is really changes in blood sugar (I have tested blood sugar -- it remains in the normal range) -- if I eat, I am more likely to blackout, especially if carb-heavy like fruit, or if have not eaten recently, like a.m. I have been gluten free for several years and alleviated my severe celiac symptoms, but am "glutenized" fairly often because my family is not gf and is careless with gluten products. These blackouts are the last major health issue, often occurring 20+ times a day! I always read seizures are a symptom or complication of celiac, but have found little additional info...MLRadinnoreply@blogger.comtag:blogger.com,1999:blog-30983428.post-41406122585485150672014-04-11T17:41:16.969-07:002014-04-11T17:41:16.969-07:00@thekingsgirl - sorry for the delay, your comment ...@thekingsgirl - sorry for the delay, your comment was stuck somewhere for a while...<br />Anyway, yes you can email me at:<br />drvikki@healthnowmedical.com.<br /><br /><br />I look forward to hearing from you.The Doctors of Root Cause Medical Clinichttps://www.blogger.com/profile/14989001572705413241noreply@blogger.comtag:blogger.com,1999:blog-30983428.post-41445739249649509442014-01-17T21:03:03.689-08:002014-01-17T21:03:03.689-08:00I would love to know if I can email you what's...I would love to know if I can email you what's going on and get your opinion. I am so glad to come across this page! thekingsgirlhttps://www.blogger.com/profile/01818533633162506108noreply@blogger.comtag:blogger.com,1999:blog-30983428.post-67354044159015363342013-03-07T14:14:08.728-08:002013-03-07T14:14:08.728-08:00Dear helovesmj,
I sent you a personal email as yo...Dear helovesmj,<br /><br />I sent you a personal email as you requested.The Doctors of Root Cause Medical Clinichttps://www.blogger.com/profile/14989001572705413241noreply@blogger.comtag:blogger.com,1999:blog-30983428.post-42898972465899247722012-10-11T22:01:18.584-07:002012-10-11T22:01:18.584-07:00I really can understand what this mother went thro...I really can understand what this mother went through. I am a mother in New Zealand and my 16 year old girl started to have seizures 5 years ago. I've been trying any good method I can think of and she always went against or reluctantly follows the regime maybe few days and pushes her own way (processed food, instant food, sleep latency, you name it). Accidentally I came across with the info on connection between gluten intolerance and seizures (A few years ago I discovered that myself is gluten intolerant, so I've been on gluten free diet.) It was so difficult to get her go through GS test and surprisingly, her anti gliadin level was 168 (normal adult level should be below 20). But she's still insisting to be on gluten (She ingests less gluten than before, so presents less severe seizure (absence type of)and she thinks food can't be the problem since her dad always said so. I'm now thinking only the natural consequences can teach her about what choice she should have made, but I can always witness she's not feeling well on gluten and it is frustrating. Is there anyway I can get the help from the gluten doctors? If there is, please let me know to helovesmj@gmail.com. Thanks.helovesmj@gmail.comnoreply@blogger.com