tag:blogger.com,1999:blog-30983428.post4290698065345652880..comments2023-08-28T08:25:13.736-07:00Comments on The Gluten Doctors: My Daughter Began My Gluten JourneyThe Doctors of Root Cause Medical Clinichttp://www.blogger.com/profile/14989001572705413241noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-30983428.post-25451668646157964612008-12-15T11:22:00.000-08:002008-12-15T11:22:00.000-08:00This comment was sent to us from KarenHello - I am...This comment was sent to us from Karen<BR/><BR/>Hello -<BR/> <BR/>I am very impressed with the glutendoctorsblogspot - thank you! Also cannot WAIT to read The Gluten Effect! I post often on a forum called Braintalk in the Gluten Sensitivity/Celiac area (as Zonulin), and help out with our Mid-Wiillamette Valley Gluten Intolerance Group here in Salem, Oregon.<BR/> <BR/>My son also had projectile vomiting (and projectile diarrhea) as a baby. The week after he was born, he began having "colic" (boy is that a bogus, catch-all "diagnosis"), which continued until he was THREE, with multiple trips to the ER when he became dehydrated. No doctor ever asked what I was eating (I nursed him), no lab tests ever done other than ruling out deadly things such as cancer. "Must be some kind of virus," we were always told. When he was 9, he began to feel constantly nauseated, with vomiting and diarrhea. An already slim 65 pounds, he lost 7 pounds in one month. We spent the next 2 years seeing 22 different doctors, culminating in a trip to the Mayo Clinic in Minnesota. We found little things here and there - H. pylori, lack of acetylcholine, IgA Deficiency, elevated lead and mercury, low immunoglobulin panel (whacked immune system), serum reaction to 25 foods using the ELISA test, 69 on the Antigliadin IgG antibody test (normal range 0 - 20), Enterolab testing showed malabsorption (high fat in stools) and gene for gluten sensitivity (HLA DQ1 - not DQ2 or DQ8, the "celiac" gene markers). No doctor recommended a GF diet, but after doing the research myself, we went GF in our house. Ted is now (at 14) still thin, but feeling great (no nausea, no diarrhea). He also eats 99% organic fruits and vegetables, organic chicken and beef, and can tolerate dairy/casein. Doctors do not GET it - we only see alternative doctors, who are able (in Oregon) to order the lab tests I request. Ted's immunoglobulin panel continues to be abnormally low, the H. pylori has not returned...<BR/> <BR/>I have become somewhat of a mental health advocate, testifying before our legislature about the eagerness of psychs and MDs to put children on dangerous psych meds instead of running any lab tests first. While we waited 4 MONTHS to see a pediatric gastroenterologist at Oregon Health Sciences University (!), the pediatrician recommended a little visit to a psychologist "to cover all the bases." While I was out of the room, she gave my 9-year-old 57-pound child a 112-question test for "aggressive, delinquent youth," asking him questions about his drug use, sex life, etc. !!!! And then had the audacity to recommend a psych med, since she "diagnosed" him with "Specific Phobia" because he carried a bowl around to catch his frequent vomit (adding insult to injury). My opinion of the medical community is not good!<BR/> <BR/>Thank you for trying to educate every gastroenterologist in this country. It will be difficult, because the cure (a GF diet) does not involve pharmaceutical drugs. <BR/> <BR/>Karen Cormac-Jones in Salem, OregonErichttps://www.blogger.com/profile/18201990414912106879noreply@blogger.comtag:blogger.com,1999:blog-30983428.post-76108580958943104752008-12-12T08:32:00.000-08:002008-12-12T08:32:00.000-08:00This comment was sent to us from Cara. Read what ...<I>This comment was sent to us from Cara. Read what she had to say.</I><BR/><BR/><BR/>Dear Dr. Petersen,<BR/> <BR/>I was just introduced to your blog today! I look forward to catching up and reading the rest of it.<BR/><BR/> <BR/> And mark my words, within the decade gluten sensitivity WILL be known, understood and the idea of waiting for a positive intestinal biopsy before diagnosing it will be considered malpractice.<BR/><BR/> <BR/>I was thrown into the world of gluten sensitivity in the year 2000... and it was fighting an uphill battle... that is for sure. I still have one daughter who refuses the diet because she chose to listen to the gastroenterologist rather than me. When she first presented with seizures, I asked the neurologist two things. Could it be related to autoimmune disease? Could it be related to vitamin deficiency? These were the two substantive things in my personal medical history at this point. And I was just learning about gluten sensitivity... due to my youngest childs poor health.<BR/> <BR/>I began The Gluten File many years ago as I learned more and more about gluten sensitivity...and hoped to spread the word to other patients being led astray by their doctors. Here is my story as I tell it there~<BR/>http://jccglutenfree.googlepages.com/thestory<BR/> <BR/>It still feel a great sense of relief and validation when I learn of those in the medical profesion who understand and believe in gluten sensitivity!<BR/> <BR/>Thank you!<BR/> <BR/>CaraErichttps://www.blogger.com/profile/18201990414912106879noreply@blogger.comtag:blogger.com,1999:blog-30983428.post-23221728788013594632008-12-10T11:34:00.000-08:002008-12-10T11:34:00.000-08:00well congrats on your daughter's birthday.well congrats on your daughter's birthday.Anonymousnoreply@blogger.com