I recently saw an
“Ask the Doctor” question on a popular news website. The
individual's question involved degrees of gluten sensitivity. She already knew that she
didn’t have celiac disease, but she wanted to know if gluten was still a
problem for her.
Much of the data
shared was accurate, but there was some misinformation presented also that I
wanted to point out, so that you won’t be confused or misinformed.
To define our terms,
I use 'gluten intolerance' as an umbrella term that embraces both celiac
disease and gluten sensitivity. Research
into gluten sensitivity is still in its infancy. Just a few years ago, researchers were
arguing whether or not the condition even existed, and today some major
research dollars are being spent to understand it and diagnose it. While that
is positive, we still have a long way to go.
Celiac disease is
estimated to affect 1% of our population with that number increasing to 4% with
age.
Gluten sensitivity is
conservatively estimated to affect 10% of our population (remember the research
is very young) which makes it an extremely common condition. Personally I
believe that we’ll find gluten sensitivity to affect upwards of 30% of our
population, but time will tell.
Unfortunately, this
knowledge is not yet widely known among clinicians as evidenced by the woman
who sent in her question. And I quote: “I know that I'm sensitive to carbs but
I wanted to know how sensitive I was to gluten. I had a test taken by a nutritionist,
and it came out positive. So I wanted to get tested by an official M.D., which
I did. He tested me for celiac disease, even though I told him I didn't have
it. He didn't understand when I told him that gluten sensitivity has different
degrees of impact.”
All too often
patients who suspect gluten intolerance are tested only for celiac disease. The
poor sensitivity of the tests aside, (there are many false negatives) omitting a
test for gluten sensitivity easily misses diagnosing millions of people who are
suffering from the ill effects of gluten.
The doctor who wrote
the answer apparently interviewed Dr Joseph Murray of the Mayo Clinic. Dr
Murray is someone I respect highly, but I do have to disagree with some of the
information that is attributed to him in this article.
Before I mention my specific
disagreements, I do want to note for the record that individuals are not always
quoted correctly and this very well could have happened here. Just yesterday I
had the same thing happen, when I saw a quote attributed to me on a website
that was inaccurate.
Okay, let’s get on to
what was said, what I disagree with and what the truth is in my opinion.
Dr Murray is quoted
as calling one version of gluten sensitivity “celiac lite” and stating that the
person doesn’t have the positive tests for celiac disease but has digestive
symptoms that benefit from a gluten-free diet. He also states that non-celiac
gluten sensitivity does exist but defines it the same as “celiac lite” and
mentions that the patient is often diagnosed with irritable bowel syndrome or
IBS.
My disagreements with
the above are:
First,
calling a condition that creates depression, migraines, obesity, fatigue,
schizophrenia and pain ‘lite’ is insulting to those who suffer from it. None of
the over 300 symptoms and conditions associated with gluten sensitivity are
‘lite’; they are serious and potentially life threatening. In fact in the
Journal of the American Medical Association, fellow American researcher Dr
Peter Green cites Dr Ludvigsson’s findings
from Sweden, that undiagnosed gluten sensitivity increases your mortality rate from
all causes.
Relegating
the symptoms associated with gluten sensitivity to only those associated with
digestion is not only inaccurate but does a grave disservice to the concept of
increasing awareness. The facts are that neurological symptoms from gluten
outnumber digestive symptoms greatly. One of the biggest hurdles we have to
surmount is overcoming the false idea that gluten only creates digestive
complaints. This is one of the reasons that our diagnosis rate is so pitifully
low (5%); doctors don’t think to check their patients for the condition.
Dr Murray apparently
quoted a recent Australian study published in the American Journal of Gastroenterology whereby researchers
acknowledged the existence of gluten sensitivity but were unable to determine
its cause.
That
may be the conclusion of those researchers, but we do know that gluten
sensitivity results from the immune system reacting in a negative fashion
towards gluten. It may not be the exact same reaction as is seen in celiac
disease, as it appears to involve a different aspect of the immune system, but that makes it no less serious. The hundreds upon hundreds of
patients that we have personally seen in our clinic whose health improvement
was miraculous because we discovered them to be gluten sensitive, is truly
vast. These patients did not have celiac disease but they were gluten sensitive
and the cause was a negative reaction to gluten that caused serious problems in various
systems of their body.
The doctor answering
the question went on to state to the reader that there was no reliable test for
gluten sensitivity, so whatever her nutritionist ordered was not medically
approved.
There
certainly IS a reliable test. And, not only is it substantiated by research
as valid, it is also free – eliminate gluten from your diet for 30 days and see how
you feel. If you notice an improvement, that is considered to be a valid test.
There
is an anti-gliadin antibody test that measures the body’s immune system
response to the protein gluten. If the body doesn’t consider the protein to be
a problem then it wouldn’t make something called ‘antibodies’ against it. This
test measures this reaction and can be found positive in those with gluten sensitivity as well as celiac disease.
A test offered by Cyrex Labs is considered 10 times more comprehensive. It analyzes a
potential immune reaction to many different parts of the gluten protein, not just gliadin. It is thought that this will increase accuracy of diagnosis dramatically.
Further,
genetic testing exists for gluten sensitivity. These are not the same genes as
for celiac disease, but they can be measured .
Lastly,
telling someone that a test isn’t medically approved is insinuating that it’s
invalid or worthless. Our medical profession really shouldn’t be casting stones
considering it only diagnoses 5% of the celiacs suffering. If ‘medically
approved’ tests were effective, wouldn’t we have a better percentage to show
for it?
Should
15% of the United States population (at least!) simply continue to suffer and
not identify what’s really causing their health problems until the medical majority
‘deem’ that a test is now approved? I
think not.
The doctor also told the
reader that if her symptoms resolved after one month and the dietary change
didn’t stop working several months later, then she is likely gluten sensitive.
You
may wonder what my disagreement is here, considering I myself state above that
eliminating gluten for a month is a valid test. It’s not that part that I have
a problem with, it’s the section where she states that the dietary change
‘doesn’t stop working’ several months later. Let me explain:
I’ve
been working with patients suffering from celiac disease and gluten sensitivity
for almost two decades, and I can tell you that often the initial benefits that
patients notice when removing gluten don’t always stay corrected. Why? It’s not
because gluten isn’t the problem, it’s because, like peeling layers of an
onion, there is another layer of health issues that needs to be addressed.
This
is why I specialize in treating the secondary effects of gluten. If removing
gluten from the diet was the only thing a gluten intolerant individual had to
do, optimizing the health of these individuals would be easy. Unfortunately
removing gluten is often just the beginning.
Now
don’t get discouraged, the secondary effects are not difficult to treat, nor do
they need to take a lot of time. They simply need to be tested for and treated
appropriately in order to truly regain optimal health. So it’s not abnormal for this to occur, but if
everyone who had a symptom return then decided that gluten wasn’t really their
problem, we would have a lot of needlessly ill individuals doing more harm to
themselves.
And finally, the
doctor informed her reader that people often feel better on a gluten free diet
because they are eating less food overall due to fewer choices.
Really? Well I don’t find that
to be the case at all. My practice is in Silicon Valley, California, a major
metropolitan area. The reader was from Oakland, also a large city nearby, and
the doctor answering her question was also local to this same area. So while I could have cut her some
slack if she was writing from Arkansas or some small town where gluten-free
products were not widely available, making such a statement from a large city
really made no sense to me. Not only are there abundant sources of food that
are naturally gluten-free including every fruit, vegetable, nut, seed, bean,
legume and animal product (eggs, fish, meat), there are also an abundance of
typically gluten containing foods that are widely available gluten-free.
I hope you find this
to be helpful. I am committed to educate and increase awareness of gluten
intolerance to this planet. Every inroad we make in this area saves lives.
Please let me know any questions that you have.
Need Help? We're Here for You!
If you felt as if I was describing you above, you are not alone. As I mentioned earlier, adrenal fatigue/exhaustion is almost epidemic. If you would like assistance and don’t have a clinician whom you feel can assist you, consider contacting us for a FREE Health Analysis. We are a Destination Clinic and treat patients from across the country and internationally. We would be delighted to help you as we have been doing so for over two decades.
I look forward to hearing from you.
Dr Vikki Petersen, DC, CCN, CFMP
IFM Certified Practitioner
Founder of Root Cause Medical Clinic
Co-author of “The Gluten Effect”
Author of the eBook: “Gluten Intolerance – What You Don’t Know May Be Killing You!”